Dandy Walkers.....

http://www.dandy-walker.org

Dandy Walker Syndrome is a cause near to my brain and heart. Though I really haven't been too active in the cause as an adult- I have recently started to be more vocal with sharing information. This is in part to one of my best friends having two children that are affected. For those of you who are unaware of this condition- to have one child is rare, but to have two siblings that are affected- that is unheard of. Thankfully, places/groups such as the Dandy Walker Alliance and the Seattle Children’s Research Institute/Hospital are working on awareness and finding ways to foretell and treat.

https://www.facebook.com/dandywalker

Now, you may have noticed that I said it was a cause close to my brain and my heart. My heart is those girls and the other children that are affected with severe malformations. My brain...well, that is me. I was born with a slight variant that was not noticed until I was in my teens. Even then, the doctor decided that 'if it hasnt affected me yet, then it wont' due to my brain growing around the cyst at the base. They discovered it when I began to get severe migraines- which I still have and have yet to find out the source of (I just know I am allergic to almost all medications and that my migraines last for days at a time). Unfortunately, as I get older tremors and brain lapses seem to be happening- and can relate back to my variant. Still, I am grateful that I do not have a severe case that would be causing extreme impairment.

So, please....look into this syndrome, become aware, and if you would like a wrist band to support the cause- let me know :)